Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


3 December 2008

Positivity/Negativity

I always try to remain positive about everything going on in my life at the moment. I hate it if one of my friends or family is sad or upset, I'll try my very best to cheer them up! I make the best of what I have got in life. My family & friends are amazing at cheering me up at the low points of my life! I realise how lucky I am to have such good support from my family and friends when I really need them! They make me laugh when I'm down or upset about something and help me put a positive spin on the thing i'm upset about! I hate being depressed about something & do my best to sort it out and make my happy as possible! I try to have friends who are positive and always happy although i know people aren't always happy but as long as they got a positive attitude & know how to have a laugh then I am happy too!

i spent 6 months being depressed because of my diagnosis of being in hospital in 2003 when I was first admitted for my mitochondrial condition and I've worked hard at being happy again! So my family are glad that i'm finally back to my cheerful self!

Times when I'm happy:

  • Talking to friends via MSN/text/in person
  • When someone in my family circle does something funny (love you nana!)
  • When I have my cochlear implant on & istening to music
  • Making crafty things
  • When i'm having a good flirt with the guys (hey im a single girl!)
  • Volunteering at the school
  • Watching movies
  • Comedy classic sitcoms on TV
  • Watching Neville the hamster do funny things!

Times when I get upset or sad:

  • When I'm on my monthly cycle (you know what I'm talking about girls! Hormones crazy!)
  • When my family & friends are sad or upset (I do my best to help them!)
  • If someone says a bad comment to me
  • When I'm on my own at home (I love company!)
  • If I'm in any pain

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1 comment:

Julie Kibler said...

Well, in that case, I hope you're not in any pain from your PEG today!! I hope you got that all fixed up.

I think talking about stuff like this on blogs or even in a private journal can help you sort through why you are feeling a certain way and make sense of things. It's easier to deal with down days if you can point to a reason and realize it's often temporary, isn't it?

3 December 2008 at 20:25:00 GMT

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