Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

23 April 2013

update on newcastle trip

Yesterday was my yearly trip to newcastle and when we got there we went straight for the EMG which was a test to test my nerves i had never had one before so i didnt know what to expect but i had  friends who had one before tell me what they are like and that i should be fine! I found most of it uncomfortable and the needle under my knee was the painful twich! We will know the results of the test in 2 weeks.

We then went to see Doc Turbull and his registar Victoria Nesbitt who did some usual tests on me  and also the dietitian who went through my diet and was happy with my weight gain although she would like me to eat more fruit and veg! haha  
All in all they were all happy with my progress and dont want to see me for a year!
We then we down to see the eye doctor who did the operation on my eyelid and he took a look at the scar of the eyelid and he was happy with how it was healing and there was no need to have a skin graft! and he said he will see me in a years time! Below is a picture of my eye as it still healing