Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

31 December 2014

happy new year

a new year is brewing it has been good for me (apart from the anxiety) but over all its been good  i had a good holiday in south wales with my parents ive made new friends via my fb mito group which is going rather well i couldnt imagine how many people were gonna join but we have nearly 900 members all helping one another or just being there to know what we mito warriors  are going through. i shall leave it there happy new year and hope its a healthy 2015 for you all x

22 December 2014

merry xmas

to my followers and fellow blogger i would like to wish you all a happy christmas and a healthy new year hope it will be a good 2015!

9 December 2014

wow time flies...

wow how time flies since i was diagnosed 10 years ago in 2004 it was this time of months when i was misdiagnosed with mystmeia  gravis and i still cant spell it! they started me on treatment on it thinking i had that i was so depressed over that christmas in 2003 thinking my life was over. it wasnt over at all but had to make a few life changes and some meds to keep my mito stable 
nowdays i dont think mito disease is NOT a death sentence its always the infections we catch that harms us and i can still live with  it. i have my family and carers and brilliant doctors that cant do enough for me and they make life easier.Thank you