Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

18 February 2018

Nail.art n all random stuff...

Check it out I have set up a nail art page on FB as I got some nail art pens n foils from the craft fair can't wait to try them out!

Mostly been cross stitching knitting n going to gym for physio I've got got homework to do! Justine keeps me busy !!

17 February 2018

Getting there...

I am getting on well with physio and life itself muscles are getting stronger and still going to gym for physio and im also going for  0 min walks with dad to the postbox  

prof turnbull is keeping an eye on me as he was worried about my pneumonia but i am feeling much better than i was less breathless than i was i am going to a sleep clinic in newcastle in march and mums still worried about my brain and my meds!

i am keeping busy by doing 5 mins breathing between watching tv 

i am also looking forward to doing my stitches that i bought at the craft fair lots to do!

i am in touch with dave from ci group on facebook seeing if we can do a `0th anniversary of  family meet up when we first met in Huddersfield 

ALSO  going to the lily foundation family meet up with susan warnock and faye wiley will be good to see them all again i had fun last year despite catching a cold but this time will be spring we can chill outside as well!
the group is going well too and im going to start a nail art group with pics of nail art! 

thats all for now