Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

16 September 2013

mitochondira awareness week

15th to 21st is Mitochondrial awareness week! 
 I want people to know that you probably know someone who has a Mito condition
there are so many different types such as diabetes  and strokes autism MS and many more!
This week is about raising awareness of it! as you know I talk about my own mitochondrial condition which is a rare type called Mitochondrial Multple DNA deletions and it affects people in different ways. I found out when I was 18 even though I went deaf at the age of 8 and no one knew why. Since finding out I have mito my life has changed a lot because its can be isolating with the fact that I couldn't cope with a job or going out with friends etc It also doesn't help that I am profoundly deaf from it which makes it harder to make friends. my confidence was beaten but over the years I have learnt to live with it and I can beat it! :)
I hope to pass this awareness on to bloggers and friends who read this blog because so many people suffer from it!