Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


25 March 2013

healing well...

my eye is looking very well it will take some time to heal but its looking good so far as my doc says :)

13 March 2013

slowily healing...

Here is the latest pic of my eyelid after the op 3 weeks on

8 March 2013

2 weedks on...

2 weeks on we travelled back to newcastle again to get the results of how the operation on my eyelid went. well he took off my patch and had a good look at it. he told me he was happy with how it was healing and there was no need for a skin graft! i was happy to hear about that!
the doc put on another pad on my eye just to keep it healing it will slow but it will worth it!

4 March 2013

changing eye patch...



I got the chance to have a look at my eyelid when the nurse changed the eye patch, It wasnt as bad we thought it would be int he first place.
so the nurse cleaned it up and put a new eye patch on and we will wait til friday when we travel back to newcastle to find out if i will need a skin graft. fingers crossed im hoping not!