Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

23 September 2015


 this week is mitochondiral disease awareness week! i have been doing my best to share and post facebook xtatuses to get awareness of it!

11 September 2015

eek ear infection??

i got scared last week because i thought my recurring ear infection in my right ear had come back after being dry for so long i spoke to my mum about it and she called the GP who prescribed some ear drops and oral antibiotics even though i dont have a cochlear implant in that ear in that ear anymore its still one thing to worry about.
my mum then cleaned my ear out the other day and found a bit of cotton bud left in the ear from when i cleaned it and thats why it got so waxy and infected i was like phew its not that bad after all its settled down now its out haha im still having ear drops and the antibiotics til its all finished but all in all an eventful week!!

4 September 2015

im doing pretty good these days although i have a sore PEG area but nothing sudacream will fix! im getting a little worried about my weight though although im a healthy 10st 7 its all going on my belly so think more gym days are needed! Joy my mental helper is pleased with how everything is going which im pleased about as i always worry about that but my meds and everything is going great!