Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

30 March 2017

wet room

Me and the family have opted for a wet room for me as my needs are becoming more common i find it hard to get off the toilet without grip bars and we are thinking of the future when it comes to bathing me we currently had a bath which i struggled to get out of so the wet room has taken over 2 weeks to do so we are lucky we have a 2nd toilet as the builders have been in bathroom! They have also given me a higher toilet to get off more easily when im having a mito attack  pics to come later  

12 March 2017

kanso review

kanso review 

ive now my kanso for 2 or 3 weeks now and its just as good as the N5 it took a few goes for me to turn on and turn off manually (we had to go back to the ci centre as they forgot to put the automatic switch off setting on!)

Disposables last a good few days depending on how much you wear it and its really good to just switch it on and go.

ive had 3 programmes on my kanso to "play around" with. i have 3 programs on it 2 new maps. At first i had it on old map as that was i was used to but it seemed quieter than normal so i switched between 1 and 2 over the last 2 weeks which are louder and better and im surprised how quickly i adapted to the maps. i now find my old map quieter and hardly use it My only complaint was that the microphones are very sensitive and all i could hear was my hair at times but it gets quieter in the background when sounds are around. 

i have only used the accessory microphone once in my phone listening to the radio which was clear 

i havent had any problems with the kanso fallling off unless someone knocks it when hugging me! 

an advantage for me is i can wear earrings again without the back pin hitting the processor. its still really weird i keep going for my ear when taking it off and there!s nothing there!