Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

24 December 2015

merry christmas 2015

hello one and all 
its that time of year again and i started december by picking up a bug when i went to my nanas and i was sick of the way home! it took a lot out of me and ive been recovering in bed for the last week but now on xmas eve im feeling stronger im not complaining but it was hard and frustrating getting better as it gets worse before it gets better!  im looking forward to spending with family. i hope you all have a good christmas and good luck for 2016!

17 December 2015

xmas 2015

well i was hoping to make xmas 2015 healthy (as possible could) but i was let down. i picked up a sickness bug the day before the annual meet up at my nanas and i was in pain the whole time and sick on the journey home! and that set off a mito attack. 
ive spent the last few days so frustrated at my body that it sent me to tears but all i can do is rest and walk about a bit to get stronger. 
its already been a week ive been like this but im trying to keep upbeat as theres nothing really anything i can do about it but thats how rare mito is i am so happy that i have at least people who are going through the same as me so they can relate and we can moan about it!
 Anyway i hope you all have a good christmas!