Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

10 January 2013


dunno why but mum decided it was time to squeeze the cyst yesterday and it killed!!! it was painful for the rest of the night it has made me a bit nervous about the opearation now with him touching it :S just gotta hope the local will keep the pain away!

6 January 2013

cyst update...

I had a follow up appointment on ~Friday to see the eye doc at local hospital she took one look at it and wanted to operate on it! i said no no no way id rather Newcastle sorted it because they were the ones who know what they are doing with my brow suspension. in the last letter of newcastle it noted that they mah want to operate on it and i would have to stay in at newcastle which i think might happen anyway coz i want rid of this horrible cyst and sort out the posssible allergic relation to the brow suspention. i cant be allerigc though becacuse the right eye is fine and no infection whatso ever so its confusing why i have got it.at least it's not til Febuary!