Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

29 July 2012

eye appointment,.,.

yesterday i went to newcastle but we couldnt find a hotel to stay over night so we all had to get up at 7 am urgh i was sooooooooo tired!! i couldnt stop yawing the whole journey up to newcastle!!

we got there about 12 oclock and then we went to eye appointment and saw the eye doc patrick  he was happy with my eye but ihave to keep taking the drops 4 times a day in my eye and he was happy with the scar from the previous opertaiton.

Then we went to see Prof Turnbull for our yearly check up  he said he might have some work on the new mito website for me yay!!

Then on the way home we stopped off at the Angal of the North sicne it was a nice day  it was verrrrrry windy up there too! all i could hear were whoooooooooshes! It aws nice to finaly see it in person than drive past it all the time.

the weather was soooooooooooo gorgeous  u thought the sky was so blue!

26 July 2012

shit shit shit

i think from title im having a shit day!! im on these new pills and they arent doing me any good!! i just feel so tired and shit allt he time! i feel even worse than i did last yr!!! urgh on a good note we got some antibioitcs for my bad PEG infectioon so hopefully that will get better soon Why does dating have to be SO hard?? i mean for normal ppl its fine but for disbaled ppl its ten time worse when no one likes us!!! Is it sSOO much that i want  a nice guy just ONE nice guy to give me a hug when i get home?? urgh sorry for my rant!

22 July 2012

my new pet

Today i bought BOB a canary finch :) hes sooo cute and small he keeps bobbing about hence his name! :D heres a picture of him! he does these little chirps which i find cute!! oh i love bobbbbbb!

21 July 2012

new hairdo n peg...

Was a busy day yesterday! i had to be up early for the hairdressers i got a new fringe put on my hair coz my hiar kept annoying me with it always getting in my face luckily i suit fringes!
The nurse came soon after to change my PEG a week early because ive been having a few leakage infection probs so she took a swab as well as changing the PEG. its been dry so far.  Lets hope it stays that way!

here is my new hairdo  and ive been keeping busy doing lots of crafts and chiling out with my carer victoria we have been to the pet stop a few times coz im hoping to get a bird as a pet ive seen one i like but i hope they dont sell him before i can buy him!

14 July 2012


Yday i got back from wales it had been a long week!! but a nice relaxing week and the sun shined for once and only rained on the last day when we were going home!  some of the days we had to walk abount the towns which were tiring for me so we got the travel wheelchair out which we use "just in case"  here is a pic of me beside the sea

7 July 2012

my crafts

These are my fimo clay items that i made with my carer Victoria they go hard in 24 hrs!! hehe i think they are pretty good! if i dont say so myself im hoping to make more and sell them for  money for mitochondrial diseases research!

5 July 2012

chat mag....

ooo the excitment im in chat magazineeeeee!! in the health section for mitohcondira diease and cochlear implant awareness yay!!!!!

4 July 2012

oooo excting!...

OOO its all happening this week!!! Friends and family birthdays gym appointment 12 week review went great im met a few lovley guys on dating site such as oasis and POF! who knows this time next month i might have a bf haha
AND tomorrow im in chat magazine the excitiment im buzzing right now haha :)