Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

7 July 2017

respiratory help...

I had an appointment in halifax hospital only because huddersfield hospital cancelled their appointment to see about my respiratory muscles and see if need any help with.this. we met a dr Ting who was happy to meet someone so rare with the condition i have! He took my history down and my sleep pattern. l have been given another appointment for tests to see if i need any breathing apparatus at night.  i have been sleeping long hours being deaf nothing wakes me! i have also been getting more out of breath when it comes to going upstairs and walking more than 20 minutes has left me using my manual wheelchair