Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

27 January 2012

another op...

Today i went for a routne appointment about my eyes and i come out with an operation. i have had a cyst just above  my eye and the doc was concerned about it what with the sillicone i have had in the eyelid thanks to the operation i had done last year on both eyes. So she wants to be cauciious and go in to theatre to take out the cyst.  Until then she said try eye conpresses to see if it will get smaller. She doesnt think it will go on its own. So another local injection in the eyelid!! it should be a doddle after the brow suspensions!

Replacement ci...

This  morning the replacement cochlear processor turned up in the post by recorded delivery although its a brown one rather than the black one i normally wear. But as long as it works thats fine by me! theres been no cutting out so far so good. :)

26 January 2012

cough doc...

Today i went to leeds hosptial to see a cough doctor.  Me and my mum went by ambulance car that we called up for they were very friendly and chatty :)  when we got there we went straight in! we had a chat about my past problems with breathing and coughing espeically since last year i had a chest infection and i couldnt cough up the mucus in my lungs. She connected a wire to my ear to see how my breathing was and it was fine thank goodness! she then told me about a cough machine that could help me with my breathing and coughing should i ever have a chest infection again. For now she can discharge me as im strong enough but she gave me a number to call them should we ever need them. i also have a cyst above my eye grr again! i have four weeks to put hot compresses on it to see if it will come out itself. if not we will have to go to hosptail to have it taken out. Next big appointment is newcastle in march for the usual tests. i will blog about it then.

25 January 2012

Peg Change

The nurse came to change my peg today as usual i have it changed every 3 months so i dont get infections. A button peg is much better than a tube peg as you get more infections with a tube one. 
Today the nurse couldnt get it in for some reason as its always gone smothly before!
she had to put a catheter tube in to keep the hole in my tummy open. she eventually got it in thankfully so i didnt need to go to hospital! it wasnt as painful as i thought it would be. But it certaintly scared me the fact that i might have to go back to hosptial to have it open again because the last time i had the peg put in i nearly died!! literally!