Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

4 April 2011


Apoligies for not writing on my blog for a while. I've been recuperating still from my viral infection.  Yes, i STILL have it! lol
I have been given more meds from my GP with the help from Newcastle docs via phone to try and get over this.  Ive been having a lot of sleepless nights therefore not been up to doing much except want to stay in bed all day because the  viral infection has been messing with my PEG feed too making me feel very ill. i just hope in time i will begin to feel better.