Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

13 June 2013

dietician appointment...

yesterday i had the dietican come round to the house and we discussed my diet, last time i saw her she was trying to get me to put  ON weight because i was 9stone now im 11stone she wants me to lose a stone and stick to the 10 stone! i never know what the hell she awnts from me! first she wanted me to put on weight now she wants me to lose it i look healthy the way i am now but she argues that she doesnt want me to put any more pressure on my hips as it would affect my walking.  so im gonna have to ditch the sweets and crisps....wish me luck!