Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

8 December 2011


this morning i had the dietian round for a check up. i am finally at a perfect weight of 9 stone 7! i know i was shocked myself! its  been a while since my dietian has been happy with my weight and shes finally happy! i am enjoying being curvy since i have been able to find closed to fit me!

on other news
i have a halper come round every thursday and she doees what ever i want to do like make cakae with. she gets paid to spend time with me but i dont mind as shes my age and she is a nice to have   company with.