Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

27 December 2012

Xmas is over...

Well christmas is over for another year! and im still stuck with the huge cyst on my eyelid it looks awrful that wont even put a pic on here til im sure i can get it sorted out. which wont be til Feburary urgh so long to wait! iits also really sore1 hope my mito eye doc can sort it out coz its obviously caused by the brow suspension. i dont know if he will have to take it out altogether or will just might be able to salvage it but il have to wait to Feburay til i get those result as il be off to newcaslte in feburary when il having  a full MOT on my mito! to see how or if my mito has got worse or is just remaining the same. i havent really had an episode for a while where i cant get out of bed. Before then i see the eye doc at he local hospital and she will collarbrate with the mito doc in newcastle to how the cyst is.

24 December 2012

merry christmas bloggers

17 December 2012

Another op urgh...

what is it with me and infections??  i have been fighiting an infection in my eyelid wihich is a big cyst on my lefft eyelid.
i have been trying to fight it off and make it smaller with hot conpresses, oral antibioitcs and eye antibitoics but to no avail its just got bigger and bigger urgh
so when we emailed newcastle where i had it done, the eye doc said it might be worth staying in and having another operation under local anestentic which i really didnt want.

They may have to take the whole brow suspention out alltogether which i really dodnt want either. but i hate how the cyst looks. its just about hidden by my fringe which helps
it doesnt help my eyesight any good either because the cyst is pushing the eyelid down. and im also worried about if it will droop more back to how it was before but hopefully they can try and save the eyelid from doing that. 

The face is the first thing that everyone looks at and all they see is a giant cyst on my eyelid and ask what its there for. When i look in the mirror i see it this big blob on my eyelid and wonder what other people might think of it. hopefully my doctor can salvage the brow suspension and get rid of the cyst. but at least it wont be til feb next year. il try and get a pic of it before and after
That is the plastic surgeons job to make sure it doesnt disfigure my eyelid coz the cyst is a bit big so hopefully they can get rid of it without disfiguring the eyelid.

12 December 2012

another cyst,,,

i dont know if i blogged this but i have ANOTHER cyst on my eye and its ever bigger than before. i had a previous eye appointment who said the cyst may be attacched to the stitch from the brow suspension ihad. well that was wrong coz it came back!!!
i had another appointment yesterday and im still everwondering if im gonna get rid of it coz its so ugly and right on the eyelid for all to see.
hopefully the antibiotics strink it! it seems to be pushing my eyelid down more which will tell u how big it is...
i wont dare post a pic coz its ugly enough :s urgh im just hoping it wont come to more surgery but know my history it probably will sigh but im even more worried about this cyst because its got some nerves in it so im worried it will hurt more!  im hoping it wont come to that thought but i dont see my docs til next year so i have to go through xmas with it belgh

7 December 2012


We got the dvd of the mito meeting it was intresting watching it back again even when we were there!!
im slowing getting better from my depression