Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

21 May 2011

update on Newcastle...

Three weeks after newcastle, I feel crippled from backpain from the walking i did there and i saw all the docs. they have began an intensive support to me in the way of depression towards my condition and things that have been happening since christmas such as my chest infections. My doc Mr Turnbull has been in touch with various other docs regarding my breathing, depression, my energy fatigue dietian etc..
i had been ok energy wise but going up to newcastle i dont know what happaned to me up there either bad hotel beds or the walking long car journey up? or the the worrying?  but something has clicked in my head and makes my body think my body is weaker than it is
 i do wish my body was the same as it was before newccasle at least i could do stuff easily such as things i cant do now.
im kinda worried for the future now as i worry about my aches and pains.
its even clouding the things i enjoy doing such as chilling out watching tv browsing the net and doing everyday things. sleeping isnt too good either BUT I am determined to get back to how i was at least before newcastle. 
I have been doing my physio exercises at home hopoefully they will help.  although it doesnt help that i have a new mattress to get used to which crippled my back again. its not easy recovering when you keep getting a bad back!!!
anyway thats all updated for now and hopefully the  next blog will be more positive!