Welcome To My Blog...
There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.
26 June 2009
24 June 2009
Because it was soooo sunny, my eyes were almost closed due to the brightness! I'm a bit blind when the sun is that bright and I cant see where I am going...
Also today, a kid in the class I was helping in went "BOO!" in my cochlear implanted ear right in the microphone! Just above all the class room hustle and bustle, I heard him and turned and he went "scared ya" hehe :) bless him! If he had done it in the unimplanted ear, i'd never have heard him!
So this afternoon of fun. frolics and sun, I am so tired! The sun really make my eyes hurt at times when I'm out in open sunshine a long time which I think is because my eyes are so small and the fact they are droopy and not letting much in so when I'm out in bright sunshine, it really hits me and my eyes automatically try and close because it's so bright! Apart from the sore eyes, I had a good afternoon and I intend to have a goooood sleep in! Zzzz....
22 June 2009
On another note I had a good day at the school where I volunteer. It was nice just sitting on the grass hearing all the kids cheering on their teammates in a race!
21 June 2009
15 June 2009
3 June 2009
- It will give me a better quality of life
- Maybe my eyesight will be better (less double vision)
- No more droopy eyelids
- I won't have people asking why I look tired
- My eyes have been sore because I'm straining them what with having to keep them open and my eyelid muscles not being strong enough to keep them open. (hence the droopiness)