Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

18 January 2011

Dissolve, stitches, dissolve...

My eyes seem to be getting there now. the right is fully healed but the left still has some tiny stitches that are refusing to budge and dissolve! They arent sore or anything but wondering why its taking so long for them to come out. Even the local nurse didnt want to attempt to take them out!
Last night i was awake half the night with a very sore chest after all the coughing ive been doing, it was so bad it felt like heartburn and didnt go til the monring when i had some paracetamol but at least i had some sleep.
im not sure how im feeling about how the eyes look so far. yes they are open and im seeing ok (although still closing one eye to focus) theres not any double vision unless im tired and they tend to get achey easily.
i havet had open eyes since i was a kid, even when i was a teen i never really noticed that my eyelids were over my pupils til a doctor pointed it all out at 18. im not too bothered about how they look anyway. the op was required to keep them open rather than make them look better but im happy with them anyway, i can see. i can hear (with the ci) and am happy.

9 January 2011

Fed up...

I am fed up of feeling ill now, over christmas and new year I have caught every bug going and i havent even been anywhere apart from one trip to the docs!  My brother has given me the latest bug and i have a killer sore throat feel tired all the time because I cant sleep! its so annoying.  I have'nt had a decent nights sleep since the beginning of december i could cry at times!
Ive had non stop sniffers, vapour rubs, head coolers but Im thankful I had the flu jab and its not gonna get any worse than this?!
ive resorted to writing on notepads to "talk" since its hurts too much to actually talk.
it reminded me of being back at school when i lost my first cochlear implant and i relied heavily on written notes to help me through my GCSE's.
On another note, my ledt eye is getting there, its still sore due to the lack of sleep and the longer recovery time due to the complicated op so im on my 3rd batch of anitbiotic drops but its starting to feel more "normal"
I've taken many a paracetamol over it over the headaches and the pain i got from it but now hopefully its all over.

3 January 2011

Happy new year...

Happy 2011 to you all in the blog world.
I dont have many resolutions for this year but just hope it will be a good and healthy year!
I started off new years with a bloody cold but am feeling a bit better!
The eye ops are officially over (i hope!) just have to get used to them!! The left eye is the worst. The rght eye has recovered well although my left is "seeing" a bit funny with blurryness or double vision but then again it was a complicated eye to work on my doc said so we will see what the new year brings