Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

24 February 2015

a historic result...

Today was a historic day for people and families who suffer from mitochondrial  dieease. The house of lords voted in favour of the 3 parent IVF! this is going to change many peoples lives for the better as they are allowed to give birth to a child WITHOUT the mitochondrial disease!

it is good news for me and fellow friends who have mitochondrial disease who would want to have a baby in future and we can give birth to a healthy child with no trace of mitochondiral disease

We thank the lily foundation and the work of professor doug turnbull for their tireless work to make sure it could be approved.