Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

6 August 2008

Raynaud's syndrome

I am not looking forward to the winter months when it becomes cold because I also have Raynaud's syndrome too. When the cold seasons come, I find myself constantly trying to wrap up warm and it takes forever to warm up! I also find myself staying in a lot more than usual because I don’t want to go out when it’s freezing which makes me even more bored. I’m sure I’ll keep myself busy with a latch hook rug once again! I will probably live in my jumpers the whole winter months! Although the weight has made a bit warmer than usual, I’m not sure how much warmer it will make me in the winter months. I hate the cold! Even the slightest draught makes me cold! Grr
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