Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

2 August 2008

A little trip to blackpool

I rested for a few weeks at home and enjoyed the sunshine we were getting. I sat in the garden most of the time reading magazines. I was 6 stone at this point.

In August 2007, my parents took me to Blackpool, a seaside town for a few days to recuperate. My brother decided to stay at home. The last time I went to Blackpool for a few days was after my last intensive care stint in 2003 and we went in the summer of 2004 but I ended up collapsing after walking too much. So from then on, we either took the tram or had a rest between walking.

I had brought my PEG pump and everything that came with it along too as I was still being fed every night. When I was not being fed, I was quite happy to sit in the tea room of the hotel reading a paper while my parents took a break from me or we all went out together. I went to see a show Legends where we saw the impersonators of music artists such as Freddie Mercury & Rod Stewart. I thought it was brilliant and very entertaining! At one point, Freddie Mercury ended up sitting on my lap as part of the act!

I came back home refreshed and ready for anything!

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