Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

3 August 2008


I do feel isolated from time to time being at home most of the time. I do things to keep myself busy like making things. My friends have their own lives/careers so I don’t see them as much as I’d like to. We always take the time to meet up as much as possible. I volunteer one day a week at a special school to get out of the house as I can’t work. I get tired easily and if I had a job, there would be sick days and hospital appointments so I stick to volunteering where I can do what I can on my own hours. I help out on reception doing admin and I enjoy it.

Even being with friends can be hard because I’m deaf and when I’m with a group of friends, it can be hard to follow what everyone is saying. I could be out for a meal with friends and I would be sitting quietly while everyone is chatting because I’m not following what they are saying .The voices come in all directions and I’m not sure which way to look and who to talk to! I try my best to join in at times but I’m better on a one to one basis! It can be hard when I’m in a place that’s noisy too. A cochlear implant doesn’t solve everything yet! Maybe in the future, I’ll learn to deal with it more and my communication skills will get better.

Just one of the things i made while I was at home

A latchhook rug made which I made over 3 months.

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