Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


3 January 2009

New Year, More confident me...?

The New Year 2009 has started off great for me so far so I hope it continues! Im glad my new year’s started off better than last years! I enjoyed the night at my friend’s house! There was wii game fun and I brought my Wii fit board along! :D I have been trying to over come my balance problems with it! There are programs on it to try and make ur balance better and it makes it fun such as the step one where you have to follow the beat of the music and do the steps. I rock at that one haha

It was nice to spend New Year’s Eve with my friend because normally I’m with my parents and generaly people their age. I don’t have a problem with that but I get so bored because it’s my parent’s friends rather than my own and I just feel isolated around them sometimes! My life is mostly around older adults rather people my own age so I always keep trying to find people my own age and make new friends. Either way I was pleased to go to my mates and celebrate with them! I had a lot of fun! I can see my confidence growing even more since I got out of hosptial in 2007 and with the weight gain, I have recieved lots of comments all positive! On New Year's Eve, my friend's mum commented how much better I look with my weight gain and that I was looking happier in my self, which I am! :0) Although, i know my social life could be better and go out more and making new friends etc...
But I know this... I know I can't change a lot and I like to stay home a lot. I have never really liked smoking or going out getting drunk! I can go to a nice pub for a meal or to chat but clubbing NO THANK YOU! It may be boring but I like to socialise with my friends as a group or on a one to one basis, going to the cinema or going to town, spending time at each other's house's and having fun! I do wish I could change slightly and go to some of the places my friends go to, knowing me though, I would be moaning a bit to go home as I am tired so I don't go with them as I dont want to spoil their night but oh well I can still have a good time at home :0)
You can't change who you are and what you llke & not like! :0)
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