Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


15 January 2009

New Batteries, Please...!


Sometimes, I ask my mum to order my "Power ONE Implant plus" cochlear implant batteries but lately I have stuck to picking up the phone myself and ordering them!


I ordered some over the phone last week because I was down to 2 6-packs but they never arrived! Luckily, we keep emergency batteries everywhere!! We keep some in my parents car, in my mum's bag, in my bag! hehe You can never be too careful if you're caught short and your batteries have just gone especially if you have somewhere to be and need to be listening! I hate it when you are somewhere and enjoying something and your hearing just stops dead because the batteries have gone! I mostly always change my batteries before they have the chance to run out though because I hate it when it just cuts out!!! it can be annoying when you are in the middle of a conversation too! My batteries usually last about a week depending how many hours Ive had my cochlear implant switched on as sometimes I have late nights which is always more battery time!

My batteries that I ordered didnt arrive! I was getting worried I would run out but I called up the cochlear centre again yesterday instead of asking mum to do it.

They sent some emergency ones via 1st class post and I recieved them yesterday, the rest followed today! I won't have any trouble with my cochlear implant cutting me out of conversations woop! :D
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