Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

7 January 2009

CI's and colds...

Today I woke up with a sore throat and some tiredness! I find that when I have a sore throat or a cold, my hearing from my cochlear implant is affected and sometimes seem a bit quieter than usual or a bit funny... When I am tired or have a cold, i am more likely to have tinnitus or the CI hearing sounds a little werid and fuzzy! I guess it's unavoidable since the throat nose and ears are all connected. i even found a change in sound when I had my tracheostomy in 2007, it sounded almost raspsy like I was a dalek from Dr Who! I lost my speech for a few days and relied on a white board to write on. It also took a while for my voice to become strong again, I could just about whisper but I had to talk to get it back! I was always worried about the hole in my throat but docs always reassured me the voice would get stronger as time goes on and it did. I am quite good at a screaming match when I have one i can tell you now so I can be used to my voice being loud at home! Whereas, in the big wide world, the voice goes quiet as I get to meet new people and do new things...
BUT I am gaining confidence and learning to ask and interact with people as thats what volunteering in a school is all about! It's great fun along and I gat a good sense of acheivement in myself! Which comes to the point, that I think 2009 may be the making of Laura??
Who knows!
2008 was a fantastic year for me regarding confidence and learning to how to be more comfortable around people rather than being shy & I did my best to get stuck into whatever I planned to do n enjoy it!
I have volunteering this afternoon but looking forward to getting back into it! I also rang the Cochlear implant centre and ordered me some batteries like it was nothing! haha
I hope everyone else has a good start to the new year! if not, then as the saying goes...
Things can only get better! X
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