Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


4 May 2009

Latchhooking away...

I haven't wrote on the blog for a bit so I apoligize for that. I have been latchhooking away at the new kit I got! ive tried to do 10 lines a day. Although, I haven't really got to doing 10 lines every day what with distractions etc... but im almost finished with 20 lines to go! Most of you probably don't have a clue what I'm waffling on about but I'll show you when it's done! :)
I have been feeling and looking sleepy because of my eyes. I think it's the lack of sleep due to my bad arm... I don't like to sleep on my cochlear ear although I have in the past but not for long. I prefer my right side to sleep on. I forever feel like feel llke the fairytale " the princess and the pea" because i still feel things such as the mattress springs even though I've got a duvet or 2 on top of it! It used to be much worse when I was skinnier. Even now I notice a difference of my right side being smaller than my left side as I've always slept on it.
I am currently enjoying hearing the rain come down at the moment as I can hear it pattering against the wall and the window. Quite soothing! :) I shall post a video of my latchhook soon!

No comments: