Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


5 May 2009

Spontaneous things...

Since I have had my cochlear implant, it wasn't so bad to do spontaneous things. I could still sleep at friend's houses and things like that. I could just put my cochlear implant on a piece of paper on a table safe from things while I sleep and I always had spare batteries in my bag just in case.
Nowdays, it's a bit harder what with the PEG, athough it's not that much of a change but I have to organise if I'm staying out. I need to bring my syringe with me to flush my PEG with water at night like I do every night and morning!
Ah, I'm not too fussed about it anyway, I've been more of a organised person than an spontaneous person! :)
Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)