Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

11 May 2009


I need'nt have got upset about my weight since the bloody Wii fit scales are WRONG!!! When I stepped on the Wii fit weighing scales, it noted that I was edging on 6 stone at 7st 1 but I decided to try the REAL weighing scales in the kitchen and it turns out im 7st 7. which isn't that big a drop from 8stone 3 that I was after all the PEG feeds and dropping to 3 nights a week. I got upset because of the bigger drop and thought I had lost all that weight which some people would LOVE to do. But me on the other hand am different, in this day and age with everyone trying to lose weight, I'm trying to put it ON!
I'll be weighing myself on the REAL scales from now on, save me some upset!
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