Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

20 November 2008

Weather sounds...

I love it when it rains, especially when it rains heavy. In summer, I always have my window open in my bedroom when its warm & I can stay up till the early morning hours just talking to someone on msn! While I am in my bedroom, and it starts raining heavy, it just sounds very calming! I can sometimes be on the internet in my living room and my normal chair is by the window so when it rains heavy, I can hear the pattering against the window! Its sounds like these that I’m grateful I have a cochlear implant because if there’s one sound I treasure, it’s that calm pattering of the rain!

Another form of weather that I love is thunderstorms! Once, I came home with my mum when it was pouring down and we had just got in the door when there was a BOOOOM! behind us! We thought the roof of our house had come down but it was thunder! It was the loudest I had ever heard it before but it was brilliant because I love it when you get a thrill like that! I also know that the lightening comes first, then that BOOM rolls in a few minutes later! It’s just the most amazing and thrilling sound that puts tingles down your spine & gives you goose bumps!

Snow is great to watch too, if you are all cosy inside your house! I don’t often go out in it unless I have to because of my raynaud's syndrome. It’s lovely when you have a world that’s full of white, fluffy snow when you’ve just woken up! Although, sadly we never get as much as 1 or 2 inches of snow and we haven’t had any deep snow since the early 1990’s round where I live & I was only a little kid when I saw snow as deep as that!

My best weather though, as is anyone’s is the sunshine! When it’s sunny, I’ll sit in the garden on my swing chair and read a book! I like it when I’m out in the garden too in the summer because I can hear all the different bird songs as I live near some woods! It’s just great, so peaceful, well apart from all the birdsongs but they are the best bits of being in the garden!
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