Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


17 November 2008

Blissful unawareness...

Most of the time, I am relatively good at talking to family & friends one on one about things and ok at the group thing but what I find about deafness which I hate is that I tend to miss things. Not the “I miss the occasional word” in group situations or me saying “what?” but it’s the growing up and missing the things that are going on with other people. I’m always finding out new things even now about my friends and the things that they have been through in the past because I never knew they were going on at the time due to me missing people talking about it etc. Like if friend had a problem with another friend in the past, I was in ignorant bliss of not knowing about it…? But I would have liked to be included in things like that and let me know what’s going on with people. There have always been things like “I heard this…. “ or “did u know this…” and I don’t because no one lets me know about it or I find out from someone else who has heard it but only via MSN messenger. Ah the glories of MSN messenger, where I never miss a thing of what people say because it’s written. If only there was something in life like that where you wouldn’t miss a thing of what people say and what’s going on with people. I do my best to keep up with what’s going on with my friends and family but sometimes it feels like I’m not included & if it doesn’t include me, I don’t want to end up saying something wrong or something I’m not supposed to say to someone and it’s all awkward & I feel horrible about it!
It’s happened before in the past and I’ve got in trouble with my parents with it etc because I wasn’t supposed to say something to someone but how do I know it’s a secret if no one tells me…!!!

I would prefer to know about something than someone keeping it from me especially if it includes my family and friends! I hate it when they say my family says it’s nothing to do with me but I like to feel included in things going on in the family even if it’s just as simple as something as something my brother did at university!
Although sometimes, it’s good to be blissfully unaware, if it’s an awful situation
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