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Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions which I have had since birth but I didnt find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then 15) I lost the 1st cochlear implant in my right ear after 7 years due to a bad, accuring ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


24 November 2008

Cannulas (shiver)...

Cannula..... What a horrible little word! I perfer it's latin meaning which is "little reed" If you dont know what a cannula is, it's a little tube with a needle that goes in your viens anywhere on your body! Normally for an operation it would be done on to top of your hand. Below in the picture you can see my bandaged hand where the cannula is under! I wont show you the actual cannula because basically even looking at one myself just makes me shiver because its connected to some horrible times I''ve had with cannulas.

I've had bad times with them from doctors driving to squeeze blood out of my hand to painful experiences with IV drips. IV drips were were ok the few operations I had but then each time I was on an IV drip, I had painful hands because of the liquid from the IV drip to my cannula and it always made the vien it was going into swell up somehow and was very sore going in that I would actually cry! So I developed a phobia against the actual putting the cannula in my hand by a anesthetist. I would never let them put it in and nurses had to cover my eyes and everything or hold my hand down to put it in! One of the later problems with cannulas were that they could never find a vein to put it in because my hands were always so cold! ( as I always was because I'm a wafer thin hospital robe! Who wouldn't be cold??!) Last year because of my phobia, I asked to be put to sleep by gas first before the anesthetist put any cannulas in my hand & I think I may always do so in future if I ever had any more operations, its just a horrible thing to have in your hand! I cant even look at one on a TV like any hospital programmes I may watch, real or fake! Not that I'm hoping to having any more operations or be put to sleep in the near future! I would perfer it if I never had another operation in my life again but I dont think that will ever happen....

There may always be a time in my life where I may land in hospital or have a procedure done because of my deafness or my mitochondrial condition so it's a thing I will have to sadly get used to...

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