Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

13 November 2008

Silent talking...

I wonder if anyone esle ever has moments where they think they can hear although they can't? Like when I have the external part of the cochlear implant switched off, the silent world I have lived with since i was 8 years old and am quite used to but sometimes I feel I hear something but it's just the vibration or something like that. It's a very strange feeling for example I can be in a bath in silence and I think I'm hearing splashing but i'm not if you know what I mean because I KNOW I can't hear without the cochlear implant on! Im in complete world of silence! Also, when I have my cochlear implant off my ear to go in bath or when I just want to spend some time without it on, my parents have told me that I tend to get my words jumbled up or not saying them right and that my voice goes quiet because I can't hear my voice and know what I am saying. It always go back to normal when I put the cochlear implant back on! I always found that strange! hehe
I'm really looking forward to Christmas coming! The shopping has already started! I love christmas! The songs, the get togethers with family & freiends, presents, the dressing up, christmas Tv and food!!
Christmas is gonna be good!! :D
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