Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

22 April 2012

Heart monitor...

On friday i had an appointment at the heart clinic at the lcoal hsoptial so i got there bright and early it was busier than the last time we went there!  Me AND my mum went into a room when nurse   called us she took my weight and height. she said i was 5 ft 5 so i thought id lost a foot coz i always thought i was 5 ft 6!!

She started me off on the breating machine where u have to take a big breath in and then a big blow out into a tube  n it measures how strong the breath is.

I did this a few times so that she got the best reading

She wanted me to do this monitoring thing when im asleep to see how my heart is when im asleep so i had to have this monitor on my wrist n finger for 10 hrs while i sleep and send the monitor back to the hospital in the morning  to analyse the readings

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