Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


30 April 2012

cold...

urgh dads given me his cold! crappy immune system! at least i aint gonna get flu  coz ive had the flu jab! although im on my feed pump right now pumping me full of vitanmins and minerals and calories to fight off infection i also have to do 500 mls 3 times a week instead of doing over night so our dietican has cchanged our order for the 1000ml bags and changing them to 500mls and do it during the day while im watching tv or on the internet and its easy to disconect if i need loo so that will keep my immune stystem going!!  also had bad news about a family friend today so ive spent most of the day arguing with brother and mum about stuff concerning me as well so we are all a bit on edge!
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