Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

5 August 2009

Exciting times...

My PEG is getting better so thats something, Im listening to the drone of the washing machine which is making me a bit crazy and want to shut the door and block it out, rather than take off the cochlear implant!
Recently, I have been talking to a father of a cochlear implant user on facebook about meet ups because I have always asked my implant centre if there were any meet ups so you could meet other cochlear implantees but all I ever got was either "pen pals from another town" or "workshop" which I didnt want. I wanted to meet up with people who had a cochlear implant and discuss our experiences etc... but now we are closer to getting other families or users of cochlear implants together for a meal where we can all chat! it will be the first time I have met a lot of cochlear implant people all at once! It will be a good experience if it happens! :D and meet the people I've talked to online.
Also my birthdays coming up next friday and i will be turning the big "24" when did time go??I dont knwo what i will be doing for it yet thought. Im sure ill find something!
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