Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

25 July 2009

Anger at "no cochlear implant" facebook group...

In the last few days, I have been introduced to some new cochlear implant users although not in the best way because I met them on an awful group on facebook called "No cochlear implant" and I and other cochlear implant users are all angry at this silly woman who thinks cochlear implants are unhealthy and can harm children. A lot of cochlear implantees i know on facebook are angry at this group and have vented thier opinion of this awful group. I am just as angry at her too because this woman is giving the wrong information of cochlear implants to people and may put people off having one. She is deleting anyone who goes against her which makes her a coward.
I could understand this woman if she saw both ways of having a cochlear implant but she is totally against them for some reason and is trying to put other people off them too! Why would anyone do that when a cochlear implant RESTORES your hearing, it does not REPLACE it because you are still deaf without the cochlear implant. This woman says hearing is unhealthy which is ridiculou because of course everyone is born with their hearing! A cochlear implant is a wonderful invention!
She also states that she doesnt want children or teenagers to be implanted til the age of 18 and they make their own choice.. which again i find is silly because you lose years of the experience of learning to speak and listen. She also thinks hearing aids are the same as cochear implants as well!!
which they are not! because if you are profoundly deaf like me, normal hearing aids dont work and require a more powerful hearing aid such as a cochlear implant.
I and other cochlear implant want this woman to delete her group off facebook!
I for one am proud of having a cochlear implant and I know lots of other people who love theirs too! I am not going be made to feel guilty in any way for having my implant. It has made my life so much better! I hope this woman understands shes fighting a losing battle against us cochlear implantees!
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