Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

12 August 2009


The PEG nurse came last thursday to get a swab from my PEG to see if there any infection in there. I got the result back today so I will be on my THIRD set of antibiotics...(sigh) but at least it will be the right antibiotics for the infection I have! I don't know why they don't just do that in the first place and I can avoid having 3 lots of antibiotics!
On another note, its my birthday on Friday and and my boyfriend is coming up tomorrow for the weekend! its gonna be greatttttttt!
I'm also looking forward to going to a bbq at my friends on saturday! I haven't seen him for a while and he's just had a baby niece awwww. :) so will be good to see him too. Just hope the weather stays nice and sunny!

I also hope it's clear tonight, i may stay up for the shooting stars! thats if im not sleepy! hehe
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