Cyst op...

Today I went to the local hopsital with mum to get my cyst removed from my eyelid. We got up at 7 even though the appointment wasnt til 10. i had a cup of tea when the ambulance came at 8 to take us there. I just  about finished my wheatbix!n We got there and we waited for about an hour before we got in. 

She put in a local in my eye lid which i got used to after the brow suspensions so it wasnt too bad! she removed the cyst and gave me 4 dissolveable stitches. Im to keep it clean and dry for 2 days.  My eye is blackening up a bit more now. Needsless to say my poor mum felt faint and had to be given an ice pack because she hates needles. This is why dad came with me for the brow suspensions!! But its all fine and another op done with. Just gotta chill out!

Pancake day!

It's that time of year again! Pancake time! I love mine with sugar and lemon! Dunno why I dont have them any other time but its like a rite of passage to have them on pancake day!

My difference in weight...

It's taken a lot of eating snacks and food and the help of the PEG feeds overnight but im finally at a healthy weight you can see the change below

Ive gone from 5st to 10st 4 pounds in 2 yrs

zumba...

Today I attempted zumba  on the wii with my friend Victoria, It was funny watching Victoria doing it but when it came to me doing it I was ok but losing my balance here and there maybe try it again next week and see how it goes then. I will move the table out the way so i dont crack my head open! But i have an appointment to see some one at the local football stadium about doing exercises and see where that goes. Needless to say after 15  mins of zumba i was knackered! But still its excercise! I will try and do a bit every other day.

A new dietican came on Monday to reevaluate my diet since I'm putting the weight on. She is happy with what i'm eating and has taken me off the feed every other night so can have a break from it.  I weighted myself this morning and I was 10 st 4 pounds so ive gone up a pound lol. Hopefully the excercise will balance it out!

Gaining and gaining...

Well, the feeds to my PEG overnight every night are diong the trick i've ballooned from 8 stone to 10 stone and 2 pounds! Although the weight gain is great  and i m happy to be this weight and be healthy but I dont want to get any fatter!! My dad has started making pregnancy jokes...
The dietican is coming on Monday to assess my diet needs and maybe change from calories to energy feeds over night.  Its a different dietican to my usual one because my usual one is on sick and its hard to find a good dietican round these parts!

other than that my N5 is going great after 2 repleacments. The first one had smartsound on it and kept going quiet in loud enviroments and the 2nd one kept cutting out. Third time lucky! Im also have problems with the hook digging in the top of my ear. i wonder if my centre has a  plastic cover to go over the hook to be more comfortably. ill try some vasaline in the meantime.

i found this picture on a blog which is intresting.It shows the generation of CI's of which I am familliar with some of them. CI's have come along way since the box ones i used to use at junior school.

I have been on the look out for mito people and I struck lucky when someone added me to a mito group on facebook. We now meet and chat on skype every Thurs and saturdays to get together and chat about mito or anything we may want to talk about. Its good to know there's mito people out there even if its not the exact same as my mito conditon. But mito conditons affect people in different ways so its good to have support and also help others with advice. I even disovered that  someone knew Professor Turbull who I  see at Newcastle  because hes known for his research into mitochondrial research.  Its a samll world!

Tumble...

I took a tumble in the bathroom last night at 3am. Must have been tired. I had basically crawl to my bed to get myself up! i now have a sore elbow and 2 bruised knees. i dont even know what happened! sometimes i dont pick up my feet enough to walk. Pick myself up and move on!

another op...

Today i went for a routne appointment about my eyes and i come out with an operation. i have had a cyst just above  my eye and the doc was concerned about it what with the sillicone i have had in the eyelid thanks to the operation i had done last year on both eyes. So she wants to be cauciious and go in to theatre to take out the cyst.  Until then she said try eye conpresses to see if it will get smaller. She doesnt think it will go on its own. So another local injection in the eyelid!! it should be a doddle after the brow suspensions!

Replacement ci...

This  morning the replacement cochlear processor turned up in the post by recorded delivery although its a brown one rather than the black one i normally wear. But as long as it works thats fine by me! theres been no cutting out so far so good. :)

cough doc...

Today i went to leeds hosptial to see a cough doctor.  Me and my mum went by ambulance car that we called up for they were very friendly and chatty :)  when we got there we went straight in! we had a chat about my past problems with breathing and coughing espeically since last year i had a chest infection and i couldnt cough up the mucus in my lungs. She connected a wire to my ear to see how my breathing was and it was fine thank goodness! she then told me about a cough machine that could help me with my breathing and coughing should i ever have a chest infection again. For now she can discharge me as im strong enough but she gave me a number to call them should we ever need them. i also have a cyst above my eye grr again! i have four weeks to put hot compresses on it to see if it will come out itself. if not we will have to go to hosptail to have it taken out. Next big appointment is newcastle in march for the usual tests. i will blog about it then.

Peg Change

The nurse came to change my peg today as usual i have it changed every 3 months so i dont get infections. A button peg is much better than a tube peg as you get more infections with a tube one. 
Today the nurse couldnt get it in for some reason as its always gone smothly before!
she had to put a catheter tube in to keep the hole in my tummy open. she eventually got it in thankfully so i didnt need to go to hospital! it wasnt as painful as i thought it would be. But it certaintly scared me the fact that i might have to go back to hosptial to have it open again because the last time i had the peg put in i nearly died!! literally!