Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


1 February 2022

Happy new years 2022

In 2021. There wasn’t much to talk about with the coronavirus about, I managed  to finish the exercises trial at Newcastle and hopefully with good results!


2022

I have just completed my own personal challenge this year whitch was a sit down cycle challenge I decided to do it for Leigh’s network which was founded by my mito friend Faye Wylie I decided to want £100 and as the month went on it began to go up up and up and by the end of the month by the genorosity of friends and family i got up to £415!  Whitch will go a long way for the charity!

I’m now looking  forward to getting a Cochlear implan processor the kanso 2! 

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