Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

17 February 2012


Today I attempted zumba  on the wii with my friend Victoria, It was funny watching Victoria doing it but when it came to me doing it I was ok but losing my balance here and there maybe try it again next week and see how it goes then. I will move the table out the way so i dont crack my head open! But i have an appointment to see some one at the local football stadium about doing exercises and see where that goes. Needless to say after 15  mins of zumba i was knackered! But still its excercise! I will try and do a bit every other day.

A new dietican came on Monday to reevaluate my diet since I'm putting the weight on. She is happy with what i'm eating and has taken me off the feed every other night so can have a break from it.  I weighted myself this morning and I was 10 st 4 pounds so ive gone up a pound lol. Hopefully the excercise will balance it out!
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