Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


25 January 2012

Peg Change

The nurse came to change my peg today as usual i have it changed every 3 months so i dont get infections. A button peg is much better than a tube peg as you get more infections with a tube one. 
Today the nurse couldnt get it in for some reason as its always gone smothly before!
she had to put a catheter tube in to keep the hole in my tummy open. she eventually got it in thankfully so i didnt need to go to hospital! it wasnt as painful as i thought it would be. But it certaintly scared me the fact that i might have to go back to hosptial to have it open again because the last time i had the peg put in i nearly died!! literally!
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