Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

26 January 2012

cough doc...

Today i went to leeds hosptial to see a cough doctor.  Me and my mum went by ambulance car that we called up for they were very friendly and chatty :)  when we got there we went straight in! we had a chat about my past problems with breathing and coughing espeically since last year i had a chest infection and i couldnt cough up the mucus in my lungs. She connected a wire to my ear to see how my breathing was and it was fine thank goodness! she then told me about a cough machine that could help me with my breathing and coughing should i ever have a chest infection again. For now she can discharge me as im strong enough but she gave me a number to call them should we ever need them. i also have a cyst above my eye grr again! i have four weeks to put hot compresses on it to see if it will come out itself. if not we will have to go to hosptail to have it taken out. Next big appointment is newcastle in march for the usual tests. i will blog about it then.
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