Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


27 January 2012

another op...

Today i went for a routne appointment about my eyes and i come out with an operation. i have had a cyst just above  my eye and the doc was concerned about it what with the sillicone i have had in the eyelid thanks to the operation i had done last year on both eyes. So she wants to be cauciious and go in to theatre to take out the cyst.  Until then she said try eye conpresses to see if it will get smaller. She doesnt think it will go on its own. So another local injection in the eyelid!! it should be a doddle after the brow suspensions!
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