Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story


25 May 2012

hot weather..

ohh so warm!!!! arggh my room was like a sauna with windows open lol we nnormally get a breeze from the busy road but its empty at night so no breeze etc  i had to meet my new carer at 11 michelle she was nice enough need to get to know her more tho! i had to drag myself to gym and then work my way through a exercise class at least it was cool in there  afterwards w got a few phamplets to see whats on in hte next few weeks i might try out some swimming clases i aint been swimming since i was a kid coz of the ear infections i used to catch! now its healthy i always a worry that its gonna come back etc but if im on the feed i have more chance of fighting it off!

after the gym we chilled out at the ropewaalk pub to chill to a cold drink outside n catch some rays! then we went home to discuss what we  could do on tues.! ohh we went to  castle hill too before we went to gym that was nice! we admirerd the view up castle h ill  n got some pics etc and we had a catch up n get to know each other after i lost victoria for personal reasons.

i have a funeral to get ready for too sadly which is next friday at his home town of Retford! i llike it there its a tight knit community :) il see all my family n friends couisn etc
hopefully it will be a nice day n we can give him a good send off my uncle who died from cancer on sunday RIP dave! will miss u very much!

anyway thats all for now gonna get on with some crafties tomrw n customaize some cut jeans that my mum cut to shorts n i cna use transfers n sequins etc :) gonna be fun!
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