Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

5 May 2012


ive caught  a cold off my dad it maybe a simple thing to you or someone whos healthy but someone with a mitochondiral disease it can cause all sorts of problems like chest infections which ain't good news!! i had a chest infection last year and when i went to newcastle last year they were unhappy with me and how i was so i got depressed and ended up being sectioned but of course this was the wrong move for me and i got better on my own with antil depressants and the help of my family and friends

it may be a cold but i havent been able to eat or drink anything for 2 days coz if i do it goes down wrong hole and it wil cause me more problems so i have been on a continuous feed during the day to top up the fight against it coz my immune system is crappy at times! it can easily lead to a chest infections for me so i have been given antibiotics to prevent this from happening!

i only just managed to get some kip and fight this cold off im nearly there im not done yet!! but its still there and at least i can have a cup of tea now :) but im still not eating anything for now til im stronger!
i'll keep on sneezing and all that but i got my tissues in hand and my laptop for playing scrabble with!!! ha who says colds aint fun! :)
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