Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

26 January 2010


Our TV broke down this weekend which we could receive no picture, just audio, which i could hear. We then brought our old TV back in from the shed. There was a very big difference in sound. The TV which broke was stereo sound and the old TV from the shed was mono sound.
The next day we bought a new flat screen with stereo but my brother didn't get a chance to set the TV up in audio etc as he had to rush off to work. So whenever people said their S's, it was a high pitched ssssssssssss at the end of when someone spoke. My parents could hear it too but it wasn't as high pitched to them as it was to me. Whenever it did it, it made my ears hurt! My boyfriend was here at the time and he tuned in the audio thankfully! What a weekend with lots of different TV changes and sounds of the TV! I have now got used to the new stereo sound again! I'm glad not to hear them "sssssssssss" sounds again!

My mum also got a new telephone too! grr so lots of beeping from the phone and her trying out the new ringtones! She's finally sorted the ringtone because it was SO loud!

These techy gadgets take some getting used to with their sounds! haha! :)
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