Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

1 January 2010

New Year 2010

This new years went rather good for once, better than the last two years. I have made no resolutions this year either. I plan to have a good year though, despite the upcoming eyelid situation...
I also am starting volunteering again at the school since i left last summer, that will be a good chance to get out there and do something even if it is just one day a week at the moment
I'm trying not to think about the eyelid thing at the moment which is going fine at the moment, I shall deal with it when it comes!
Also, this january, I get my button PEG changed, i hope it doesn't hurt too much when the nurse pulls it out... it shouldn't do, the nurse at Newcastle said it would only be a scratch and its over, not like when I got the tube PEG pulled out which was awful pain! (but then again i think nurses lie!)
I have my family and friends and the boyfriend for support for which I feel so lucky!
I have also been wasting Christmas/new year time playing crash banidcoot -mind over mutant hehe, i loved the game on PS2 when I was younger. :)
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