Welcome To My Blog...

This blog follows my journey of 2 different cochlear implants and my condition: Multiple mitochondrial DNA deletions I have started this blog 15 yrs too late but ill try my best to fit it all in! I have packed a lot of medical jargon into my life since I was 8.

There has been happiness and tears but I've come through it all with my family and my friends.I'm profoundly deaf as a result of a condition called Multiple mitochondrial DNA deletions or mitochondrial disease RRM2B as my professor Sir Dough Turnbull calls it! I have had since birth but I didn't find out this til I was 19. I have had 2 cochlear implants (at the age of 8 and then i lost the 1st cochlear implant in my right ear after 7 years due to a bad, accruing ear infection (which I couldnt fight off because of my mitochondrial condition) at the age of 15 and had a 2nd one implanted in my left ear that same year which I have now.

My Story

7 January 2010

"snow" way...

The big freeze is not to my liking... my feet are tingling a lot, I don't really know if thats good or bad. I am supposed to start back at the school volunteering but I have been suffering from a horrendous cold so I have had to email in and tell them I am coming in next week instead. I am having to put extra feeds on to keep my energy up because I really don't feel like eating and my throaty cough is scaring the hell out of me and its taking all my energy just to clear my throat and cough. I haven't really had much sleep either which is not helping matters. On another note, I have been admiring the lovely view of our back garden after all the snow fall!
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